Sunday, March 8, 2015

Seizures 3/9/15

Hello everyone. Just wanted to update everyone on what's going on. 

For the past week Raelin has about an average 4-8 seizures a day. Very scary for us. For those who don't know, when Raelin has a seizure or what I call an episode, she tends to hold her breath (hints the oxygen) and will turn blue/purple at times. Eric and I are not sure on what more we can do for her. All her doctors are saying that we are doing the right things here at home. But part of me still thinks there is more we could do. It breaks my heart for our sweet little girl go through this. She loses all contact with us and is like a "zombie". Then when she does come back she is very confused and gets upset. She doesn't want to be touched or bothered. Then she will fall asleep. Doctors say these are normal for epileptic  people. But again it kills Eric and I. Please keep our sweet girl in your prayers and that we will get an answer to why this is. And that she will get the correct dosage to ease this pain.

Tessa is confused and very bothered when she witnesses these episodes with her sister. And as parents, this adds another pain for her.

i just keep telling myself that God blessed us with our sweet child for a reason and that this will all pass. It's just getting there that is the struggle. 

-Lord, at the moment nothing seems to be able to help the loss I feel.

My heart is broken and my spirit mourns.

All I know is that Your grace is sufficient.

This day, this hour

Moment by moment

I choose to lean on You,

For when I am at my weakest Your strength is strongest.

I pour out my grief to You

And praise You that on one glorious day

When all suffering is extinguished and love has conquered

We shall walk together again.


(a modern prayer for strength from

Friday, March 6, 2015

Weigh in!

Our sweet girl is 15lbs 12 oz!!! We could not be happier :) our little fatty is get so big now. One happy mommy!

Questions- 3/6/15

Hello everyone. So today was the first day that our oldest Tessa asked me why her sister had seizures and asked what they are. This stunned Eric and I. Not is the aspect that she asked just in a way on how to explain it to her. Tessa is 4. She has seen and heard so much the past year on all the different things that her sister has to deal with. So my question is for all you who maybe reading this... How would you explain this to your 4 year old. We tried to the best way possible but was unsure of how to explain it the best way for her to understand. Any suggestions would help. Tessa does understand that her sister is different and has to have special attention because of these needs. But we do our best to keep her involed and try to explain things the best we can to her. 

Thank you for the help! :)